Speaking
Need a speaker who can talk about overcoming adversity without the usual sappiness or over-the-top sentimentality? I bring real talk with a side of humor, sharing my struggles and the “you’ll never believe this one” stories.
I’ve spoken at events like the UMass Chan Duchenne Program's 5th Anniversary and Solid Biosciences' World Duchenne Awareness Day, where I’ve shared what it’s really like navigating the healthcare system as a rare disease patient. And when it comes to accessible travel, I’ll tell you about those undiscovered gems that go beyond the usual tourist traps — because, no, the Grand Hyatts aren't exactly on my list.
My dad’s a radiologist, so I get a diagnosis every time I walk past him. My mom, a pharma strategist, keeps me grounded in the healthcare system. Whether it’s talking about clinical trials, healthcare systems, or overcoming the curveballs life throws at me, I’ve got you covered.
Topics:
Navigating the healthcare system as a rare disease patient
The patient’s perspective: my clinical trial experience
Accessible travel, with a focus on undiscovered gems
Previous Speaking and Writing Engagements:
Keynote speaker: The Duchenne Program at UMass Chan Medical School’s 5th Anniversary
Panelist: SOLID Biosciences World Duchenne Awareness Day event
Wheel the World guest blogger
